情况还是复杂
wlbtbb 写于 2008-02-24
2008-02-24 |
雨中的鸟:关于伟豪：刚问过大夫,说伟豪这两天没有发烧，伤口的感染状况目前没有再严重。但由于抗感染和抗排异是两个完全对立的治疗过程，什么时候能彻底治愈感染不好说，只能根据病情随时调整用药。前天拿了学步车进去，说是大夫允许他稍微活动活动了，但我还没问情况，也不知道用了没有。一会儿送衣服过去。>>关于探视：现在伟豪还在icu,医院不允许床边探视，只能通过电视屏幕探视，探视时间是每周二、四、六下午三点到五点。
ＬＥＭＯＮ：二位美国妈妈用英文写的关于伟豪的文章，以下是其中之一位妈妈的文章：
A Plea from 40 Mothers Living on Four Different Continents for help to Save a Little Boy!
His parents are alive, but he is legally an orphan in China. You can find more details of
his story at http://unitedfoundation.org/.
On Feb 2, 2008, when he was 16months old, 34 stitches were left on his tiny stomach,
because he just received a liver transplant, with help from all over the world.
Today, he is still in the Intensive Care Unit (ICU), fighting hard for his life.
Doctors are optimistic about his recovery, but we are now running short on money for his
ICU bill, which costs $830 per day. We don't want to give up on him, so we sincerely hope
you can help.
His story traced back to eight months ago. When doctors suspected that a baby boy with
severe jaundice and high fever had liver cancer, his parents disappeared from the local
hospital in Southern China where he was just admitted. It is very sad and unfortunate,
but sometimes things like that happen in China. Most likely his parents were desperate
because they couldn't afford treatment for him, so they left him in the hospital, hoping
that doctors wouldn't just let him die. His name is Weihao and he was just about 8-months old at the time.
Since people couldn't find his parents, Weihao became an orphan. The local orphanage
wouldn't take him, because he was so ill, and even the doctors thought he was incurable.
So the poor little baby had to struggle to survive in a crib in the hallway of the local
hospital, with only basic food and care. Even though some people visited and brought him
some food and used clothing, most of the time, he had to wait until the nurses finished
their work on hand before they could feed him or change his diaper. Getting someone to
hold him or having something better than the basic food was a luxury for him. He cried a
lot in the beginning, but then he seemed to understand his situation and barely cried,
even though his condition was worsening as time went by.
About four months later, a doctor posted his story with pictures on the internet and those
heartbreaking descriptions and pictures touched whoever came across the story. There may
be no cure for him, but he deserves better care. A Chinese mother living in England
contacted United Foundation for Chinese Orphans (UFCO), a US registered charity operating
in China, who then quickly got involved and Weihao was soon transferred to a hospital in
Beijing. There he was given good care and most importantly, a comprehensive examination.
Doctors found out that on top of the suspected liver cancer, he had Alagille syndrome,
a genetic liver disorder that would lead to cirrhosis in infancy if not surgically treated
within the first few months of life. His liver had been damaged so badly that only a
liver transplant could save him now.
A liver transplant would be a financial burden even for someone with health insurance in
the US, let alone as an orphan in China. All of his expenses have to be funded by
donations. The surgery itself costs about RMB250,000 ($35,000, at the current rate
of 7.20) without complications, and medication for immunosuppression costs about
$14,000 for the first year after the surgery (then gradually reduced over the years).
He probably needs a fulltime trained nanny which costs about $480 per month for quite a
while after the surgery. Affiliated to a hospital with US investment in Beijing, UFCO
can take care of his regular checkups after the surgery, but we still have to be prepared
if there are any complications. UFCO's funding is limited, not to mention that there
are other kids waiting to be taken care of. Despite all of these difficulties, the
Operation Manager of UFCO, and many other people are determined to save him, as long as
there is the slightest chance for his survival. Hundreds of people donated money for his
surgery, and over 40 mothers living on four different continents have pledged to make
regular donations, together with UFCO, to support his ongoing lifelong care after the
surgery, until he can take care of himself financially, or we can find a loving family
to adopt him.
UFCO got the top transplant surgeons in China for him. After the 20hour long surgery, he
was doing well for the first few days in the ICU, but then has some complications. Before
he went into the ICU, even though the hospital waived part of his surgery fee, about
$23,600 had been spent on his surgery/medical care, and about $4,200 on his daily life
care during the three months wait for his surgery. Two fulltime trained nannies were hired because he couldn't sleep at night without someone holding him due to his condition.
It is a miracle that Weihao has made it to this point. While he was waiting for the
surgery, there were days that he had an infection and doctors said if he didn't receive
his surgery during that week, he could die. However, Weihao has never given up and is
fighting all the way through for his life. We don't know how much longer he needs
to stay in the ICU, but we all know for sure we don’t want to give up on him, and we
sincerely hope you can help. It doesn't matter how much you can contribute. Every
dollar counts, and raises hope for his new life.
Funds raised here will be donated to UFCO. UFCO is a US registered not-for-profit organization operating in China and contribution is tax deductible. If you would
like to make a donation by yourself, please visit http://unitedfoundation.org/, click
"You Can Help", and click "Make A Donation", then you can contribute with Paypal or
credit card. Please make sure to specify "For Weihao's medical bill" in the purpose line. You can also send a check payable to: United Foundation for Chinese Orphans (please make sure to specify on the check "For Weihao's medical bill"), to the following address:
United Foundation for Chinese Orphans
c/o Charlene Sessoms
Chindex International, Inc.
4340 East West Highway, Suite 1100
Bethesda, MD 20814
We deeply appreciate your kindness and help!
Weihao's 40+ mothers from all over the world